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The Sturge-Weber Foundation Announces Centers Of Excellence

  June, 21 2006 4:42
your information resource in human molecular genetics
MT. FREEDOM, N.J./EWORLDWIRE/June 13, 2006 --- The Sturge-Weber Foundation (SWF) announces the establishment of the SWF’s Centers of Excellence in eight states around the country.

This new initiative will promote the comprehensive care necessary for treating an individual who has a port wine stain (PWS), Sturge-Weber syndrome (SWS) or Klippel-Trenaunay (KT).

The centers will collaborate with the Medical Advisory Board of the SWF to guide and direct clinical and basic research endeavors funded by the SWF and other sources.

According to Karen Ball, CEO of the Sturge-Weber Foundation, “The SWF recognizes the collaborative care received at the Centers plays a key role in improving the quality of life for individuals living with Port Wine Stein conditions. Together patients, dedicated physicians and the SWF will increase the pace of discovery.”

The standard of care provided at a Center of Excellence will meet or exceed established guidelines to proactively manage the care of individuals with PWS, SWS and KT in a collaborative process by board-certified physicians and allied health care professionals.

These clinicians will have experience or an expressed interest in caring for individuals with SWS, PWS or KT. The various pediatric and adult specialties included but not limited to this care are: neurology, neuropsychology, neuroradiology, neurosurgery, developmental pediatrics, ophthalmology, dermatology, plastic surgery, endocrinology, cardiology, genetics and social work.

The services may be provided at a Center of Excellence or though a network of referrals.

Centers of Excellence will be established in Scottsdale, Ariz., Los Angeles, Calif. Denver, Colo., Atlanta, Ga., Boston, Mass., Detroit, Mich., New York City, N.Y. and Long Island, N.Y., and Houston, Texas. A center will also be established in Paris, France.

Anne Howard
The Sturge-Weber Foundation
1240 Sussex Turnpike
Randolph, NJ 07869
PHONE. 973-895-4445
FAX. 973 895-4846
EMAIL: ahoward@sturge-weber.com

SOURCE: The Sturge-Weber Foundation

Message posted by: Frank S. Zollmann

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