Human subjects

[Hans Goerl <GENETHICS@delphi.com>]

From: Kris Hawley <khawley@MORGAN.UCS.MUN.CA>

I would like an opportunity to respond to the comments raised by Leslie
Biesecker concerning my posting about Familial Idiopathic Pulmonary
Fibrosis.  I understand your concerns and agree with the importance of
the point you raised, however in this situation, the purpose of my posting
was to try to find if anyone out there is doing any current research into
FIPF, or has any patients with the disorder.  Participation in this
research, is of course voluntary.  This summer research I am doing
has been approved by the Human Investigations Committee, and I am working
under the supervision of Dr. Elizabeth Ives (Genetics/pediatrics) .  In no
way is this research going to have any finiancial benefits, and my enquiry
about DNA samples was just in the hope of speeding the research.  Also, I
stated that this was for research, it is not part of a service for
screening.

Kris Hawley