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  Hans Goerl: ETHI; 2 messages  
   

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To: Multiple recipients of list HUM-MOLGEN <HUM-MOLGEN@NIC.SURFNET.NL>
Subject: ETHI; 2 messages
From: Hans Goerl <GENETHICS@delphi.com>
Date: Fri, 28 Jul 1995 00:13:38 -0400

This ETHI message has two parts. The first is an announcement of the
NCGR/ELSI program's web page. This is by far the most information about
genetics-related ethical, legal and social issure available elctronically.
It is highly recommended for general browsing or specific inquiries. The
second message is a follow-up on the question of who is going to provide
genetic counseling.

*****************************************************************************
*********

From: ELSI Account <elsi@NCGR.ORG>
Subject: ELSI at NCGR Website pages

The National Center for Genome Resources (NCGR) would like to announce
our new Web pages regarding the Ethical, Legal, and Social Implications
(ELSI) of biotechnology.

The NCGR URL is: http://www.ncgr.org
The specific ELSI link is:  http://www.ncgr.org/elsi/elsi.hp.html

We have made available two resources in particular that focus on human
genetic and Human Genome Project issues.  One is an encompassing
bibliography of ELSI related references to provide starting points for
further reading.  The other is a series of "Scopes Notes" that provide
full text overviews of ELSI topics.  We plan on maintaining these pages
with current and readable information on aspects of genetic research.

We would like to establish links to any relevant sites out there.
Please consider linking us to your site.

Pass on this information about our site to anyone who would be
interested.  Remember to visit our pages regularly as we will continue
to update it with new ELSI information.

We hope this is of interest to members of this list.

Lauren McCain

                                  |  National Center for Genome Resources
  Mike Knapp       mjk@ncgr.org    |  1800 Old Pecos Trail
  Emily Kaltenbach eak@ncgr.org    |  Santa Fe, NM 87505
  Shahar Tsadeek   set@ncgr.org    |  [TEL] (505) 982-7840 (800) 450-4854
  Lauren McCain    lmc@ncgr.org    |  [FAX] (505) 982-7690
                                   |  http://www.ncgr.org


*****************************************************************************
**** 2.


Date: Wed, 26 Jul 1995 10:18:42 -0400
From: Chris Friedrich <cfriedri@WELCHLINK.WELCH.JHU.EDU>

        The February 1995 issue of the ACP Observer, published by the
American College of Physicians, (subtitled: Information for Internists),
had a front-page headline: "Genetic counseling: Your new job".  It dealt
with the need for identifying appropriate patients, ordering and
interpreting tests for inherited susceptibility to obesity, malignancies,
and other less common conditions, and explaining the test results to
patients.  It highlighted that there are only 1200 clinical geneticists in
the US, and therefore a large amount of the responsibility will fall on
primary care providers such as internists.


Chris Friedrich, M.D., Ph.D.                    Voice   (410) 614-2521
Lipid Research-Atherosclerosis Unit             Fax     (410) 955-1276
Dept. of Pediatrics, CMSC 6-104         Voice mail      (410) 614-1030
Johns Hopkins University School of Medicine
600 North Wolfe Street
Baltimore, MD 21287


   
 
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