HUM-MOLGEN archive: ETHI; 2 messages

This ETHI message has two parts. The first is an announcement of the NCGR/ELSI program's web page. This is by far the most information about genetics-related ethical, legal and social issure available elctronically. It is highly recommended for general browsing or specific inquiries. The second message is a follow-up on the question of who is going to provide genetic counseling. ***************************************************************************** ********* From: ELSI Account <elsi@NCGR.ORG> Subject: ELSI at NCGR Website pages The National Center for Genome Resources (NCGR) would like to announce our new Web pages regarding the Ethical, Legal, and Social Implications (ELSI) of biotechnology. The NCGR URL is: http://www.ncgr.org The specific ELSI link is: http://www.ncgr.org/elsi/elsi.hp.html We have made available two resources in particular that focus on human genetic and Human Genome Project issues. One is an encompassing bibliography of ELSI related references to provide starting points for further reading. The other is a series of "Scopes Notes" that provide full text overviews of ELSI topics. We plan on maintaining these pages with current and readable information on aspects of genetic research. We would like to establish links to any relevant sites out there. Please consider linking us to your site. Pass on this information about our site to anyone who would be interested. Remember to visit our pages regularly as we will continue to update it with new ELSI information. We hope this is of interest to members of this list. Lauren McCain | National Center for Genome Resources Mike Knapp mjk@ncgr.org | 1800 Old Pecos Trail Emily Kaltenbach eak@ncgr.org | Santa Fe, NM 87505 Shahar Tsadeek set@ncgr.org | [TEL] (505) 982-7840 (800) 450-4854 Lauren McCain lmc@ncgr.org | [FAX] (505) 982-7690 | http://www.ncgr.org ***************************************************************************** **** 2. Date: Wed, 26 Jul 1995 10:18:42 -0400 From: Chris Friedrich <cfriedri@WELCHLINK.WELCH.JHU.EDU> The February 1995 issue of the ACP Observer, published by the American College of Physicians, (subtitled: Information for Internists), had a front-page headline: "Genetic counseling: Your new job". It dealt with the need for identifying appropriate patients, ordering and interpreting tests for inherited susceptibility to obesity, malignancies, and other less common conditions, and explaining the test results to patients. It highlighted that there are only 1200 clinical geneticists in the US, and therefore a large amount of the responsibility will fall on primary care providers such as internists. Chris Friedrich, M.D., Ph.D. Voice (410) 614-2521 Lipid Research-Atherosclerosis Unit Fax (410) 955-1276 Dept. of Pediatrics, CMSC 6-104 Voice mail (410) 614-1030 Johns Hopkins University School of Medicine 600 North Wolfe Street Baltimore, MD 21287