home   genetic news   bioinformatics   biotechnology   literature   journals   ethics   positions   events   sitemap
 
  HUM-MOLGEN -> Genetic News | search  
 

New Database Focuses on Genetic Policy and Laws

 
  July, 20 2004 14:42
your information resource in human molecular genetics
 
     
Bethesda, Maryland — The National Human Genome Research Institute (NHGRI), part of the National Institutes of Health (NIH), today unveiled a new Web-based resource that will enable researchers, health professionals and the general public to more easily locate information on laws and policies related to a wide array of genetic issues.

The NHGRI Policy and Legislation Database is located on NHGRI's Web site at www.genome.gov/LegislativeDatabase. The free, searchable database currently focuses on the following subject areas: genetic testing and counseling; insurance and employment discrimination, newborn screening; privacy of genetic information and confidentiality; informed consent; and commercialization and patenting.

"This is a tremendous resource for anyone interested in learning more about the laws, regulations and policies pertaining to genetics and genomics. It will serve as a valuable tool for all Americans, from academic researchers seeking to patent genetic technologies to average citizens trying to determine what protections exist in their states against genetic discrimination," said NHGRI Director Francis S. Collins, M.D., Ph.D.

The resource features a convenient, interactive map of the United States that enables users to view state legislation and laws for any of the 50 states and the District of Columbia by simply clicking on that jurisdiction. Users also can search the database by keyword, content type, topic and/or source, and can also sort the information by date or citation.

The database, which will be updated on a regular basis, contains links to full-text copies of federal and state laws/statutes; federal legislative materials; and federal administrative and executive materials, including regulations, institutional policies and executive orders. Abstracts are also provided that summarize the government materials in lay language.

The new database is managed by NHGRI's Office of Policy, Communications, and Education (OPCE), which develops policy related to the societal implications of human genome research. "This database fills a long-standing need in the genetic policy arena. It is literally a one-stop shop for anyone with an interest in this rapidly developing field," said OPCE Director Alan E. Guttmacher, M.D. "We think it will be of interest to a broad array of users, including legislators and policymakers at the local, state and federal levels."

In addition to federal and state laws, the database includes materials from these current and former federal agencies and advisory panels: Department of Health and Human Services (HHS), the Department of Health, Education and Welfare, the Equal Employment Opportunity Commission, the U.S. Patent and Trademark Office, the Secretary's Advisory Committee on Genetics, Health and Society and the President's Council on Bioethics.

This fall, NHGRI plans to add more categories of content to the database, primarily in the areas of foreign statutes and laws, foreign policy, treaty and international agreements, and policy material from international organizations.

NHGRI is one of the 27 institutes and centers at NIH, an agency of the Department of Health and Human Services. Additional information about NHGRI can be found at its Web site, www.genome.gov.

(c) National Human Genome Research Institute (NHGRI)


Message posted by: Frank S. Zollmann

print this article mail this article
Bookmark and Share this page (what is this?)

Social bookmarking allows users to save and categorise a personal collection of bookmarks and share them with others. This is different to using your own browser bookmarks which are available using the menus within your web browser.

Use the links below to share this article on the social bookmarking site of your choice.

Read more about social bookmarking at Wikipedia - Social Bookmarking

Latest News
Variants Associated with Pediatric Allergic Disorder

Mutations in PHF6 Found in T-Cell Leukemia

Genetic Risk Variant for Urinary Bladder Cancer

Antibody Has Therapeutic Effect on Mice with ALS

Regulating P53 Activity in Cancer Cells

Anti-RNA Therapy Counters Breast Cancer Spread

Mitochondrial DNA Diversity

The Power of RNA Sequencing

‘Pro-Ageing' Therapy for Cancer?

Niche Genetics Influence Leukaemia

Molecular Biology: Clinical Promise for RNA Interference

Chemoprevention Cocktail for Colon Cancer

more news ...

Generated by News Editor 2.0 by Kai Garlipp
WWW: Kai Garlipp, Frank S. Zollmann.
7.0 © 1995-2016 HUM-MOLGEN. All rights reserved. Liability, Copyright and Imprint.