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The Reimagined Patient Registry: Revolutionizing Patient Care and Research through Real-World Data

  August 28, 2023  
Xtalks, online
2023 -9-25

Series Description
The value of real-world data (RWD) is clear. The acceptance of real-world evidence (RWE) is growing. But is this enough to propel RWE from being a nice-to-have to a must-have? PicnicHealth is hosting a four-part webinar series to reframe the return on investment (ROI) for RWE generation and tackle the question: beyond the return on investment for RWE, what is the risk of inaction?
Webinar Abstract
Patient registry systems have long since served as a valuable source of real-world data and a means to study disease-specific characteristics and outcomes longitudinally. Yet, there is increasing recognition of the limitations of traditional registries — from challenges with data availability and representativeness, to risk of referral bias and burden on patients and sites.
This webinar will explore innovative ways that researchers today are reimagining the registry to overcome these obstacles and generate robust research insights from integrated data. Experts representing patient advocacy groups, the biopharma industry and health technology companies will discuss the significance of patient-centric practices and cross-sector collaboration.
The speakers will be providing their unique perspectives on this new world of registries and share relevant case studies demonstrating how RWD is transforming patient care and research.
Join this webinar to gain insights into the innovative ways to overcome challenges and obstacles related to traditional patient registries and how to generate robust research insights from integrated data.
Organized by: Xtalks
Invited Speakers: Heather Fitzpatrick Medlin, Senior Director, CureDuchenne Link Kristen Morris, VP Medical Affairs and Community Engagement, Picnic Health Clara Lam, MPH, Asset Lead - Breast, Oncology Outcomes Research, Evidence Generation, Publications & Partnerships, Global Medical Affairs, AstraZeneca Dr. Dan Drodz, Chief Medical Officer, PicnicHealth (Moderator) Evelyn Pyper, Evidence Strategist, PicnicHealth
Deadline for Abstracts: 2023 -9-25
Registration: Free registration
E-mail: ajuurinen@xtalks.com
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