European Genetics Foudantion, EuroMediterranean Center, Bologna
9-11, March 2011
Wednesday, March 9, 2011
10.00 Course Registration 10:30– 10:45 Organizing Committee General introduction to the course
10:45 – 11:30 G.Romeo Modern Genetics - Present and Future Challenges
11:30 – 12:10 K.Dierickx Survey of Concepts in Modern Bioethics
12:10 – 12:50 R.Chadwick `Gene-ethics` – Applying Bioethical Concepts to Genetics and Genomics
12.50- 13.10 Questions and Answers session 13.30 Lunch Afternoon session – Patients, families and their rights and duties 14:15 – 15:00 E. Rynning Patients` Rights- Consent, Confidentiality 15:00 – 15:50 E. Rynning Genetic Information and the Right to Know/Not to Know; GeneticInformation and Family`s Rights 15:50 Coffee break 16.00 – 17:00 R. Chadwick Genetic Information and the Insurance/Employment arenas
17:00 – 17:20 Discussion Thursday, March 10, 2011
Morning session – Public Health and screening policies 8:40 – 09:20 – t.b.d 09:20 – 10:00 J. Zlotogora Legal and Ethical Challenges of Genetic Testing and Screening
10:00 – 10:40 N.Siegal Assuring Access to Genetic Services – policy implications
10:40 Coffee break 11:00 – 11:45 J. Zlotogora, G. Siegal Legal and Ethical Challenges of Genetic Testing and Screening (B) – Carriers, pre marital, chronic diseases
11:45 – 12:30 M.C. Ploem Biobanks – comparative ethico-legal analysis 12:30 – 13:20 K. Dierickx Managing Genetic Samples and Information – access, security and privacy 13.20 Lunch Afternoon session—Genetic Research 14:10 – 14:45 S.Gevers Genetic research – The Ethical and Legal Framework -special issues in genetics research
14:45 – 15:30 S.Gevers Pharmacogenomic Research
15:30 Coffee break 16:00 – 17:10 H. Zwart Personalized Medicine, Direct to Consumer Marketing (including the business model of companies like 23andMe) 17:10 – 17:30 Discussion
Friday, March 11, 2011
Morning session – Patents; Liability 09:00 – 09:45 Patents in Genetics and Genomics (including recent precedents over BRCA) 09:45 – 10:30 G. Siegal Malpractice/negligence – Introduction
10.30 Coffee Break 11:00 – 11:45 S. Gevers Genetics and Malpractice/Negligence – Standard of care, wrongful life cases, the limits of informed consent in modern genetics
11.45 – 12:15 Discussion 12:45 – 13:30 G. Romeo and G. Siegal Concluding session
13.30 Lunch and departure Proceed with the purchase REGISTRATION FEE: €500,00 + VAT (20%) = € 600,00 The fee includes tuition, course material, lunch, coffee break and shuttle bus from Porta San Mamolo (meeting point) to the course venue and back. Please note: The Value Added Tax, or VAT, in the European Union is a general, broadly based consumption tax assessed on the value added to goods and services.
In Italy the VAT percentage on the course fee is 20%. You can be eligible for a VAT reduction in the following cases:
- You are ITALIAN and work for a PUBLIC INSTITUTION (PhD, students, Researchers, Post Doc, …) in this case please contact your course officer to obtain the reduction form
- You are NOT ITALIAN and work in a FOREIGN COUNTRY WITHIN EC. The invoice must be addressed to your Institution/Company and it is NECESSARY to complete the field VAT Number. You will be exempted from the payment of VAT
- You are NOT ITALIAN and work in a FOREIGN COUNTRY OUTSIDE EC. The invoice must be addressed to your Institution/Company. In this case you will be automatically exempted from the payment of VAT If the invoice is addressed to yourself you are not exempted from Vat payment. For more details please visit the FEE section in the FAQs ACCOMMODATION: The fee doesn’t include the hotel accommodation. For more information please visit the section: ACCOMMODATION INFO For other details please contact serena.paterlini@eurogene.com Fellowships: The European Society of Human Genetics (www.eshg.org) offers 5 fellowships covering the registration fee. Applicants for fellowships should submit their request together with CV and a reference letter to esgm.fellowships@eshg.org and to serena.paterlini@eurogene.org Deadline for sending Cv: February 12th , 2011 at 18.00 (Bruxelles Time)
CME: This course offers European and Italian credits for Continuing Medical Education (CME). Credits will be assigned to physicians and biologists through the accreditation procedure carried out by Menarini International Foundation.
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