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International Workshop in Genetics, Medical Technologies & Health Policies

 
  January 07, 2009  
     
 
European School of Genetic Medicine & Johns Hopkins University, Bologna SAIS Center, The Johns Hopkins University SAIS Bologna Center, Bologna (Italy)
6th-8th March 2009


PROGRAMME:
Friday, March 6th
Morning Session (9:00-13:00): GENETICS AND SOCIETY
Romeo, Keller
General introduction to the course
Rodotà 
Privacy issues in genetics
Lattanzi
Managing genetic databases
Garofano
Genetic database for security purpose - standards and regulations in Europe
Gemelli
The contribution of the Rockfeller Foundation to the construction of the Global Health Policy
Questions and Answers session
Afternoon Session (14:30-18:00): GENETIC TESTING AND COUNSELLING
Romeo
The medical genetics lab and clinic: research and diagnosis
Cassiman
Introduction to Genetic Testing
Matthijs
Quality management in genetic testing
Kaariainen
Quality management of genetic counselling
Questions and Answers session
Round table:
BRCA1 patent in Europe: update and implications
Saturday, March 7th
Morning Session (9:00-13:00): USE OF MEDICAL INFORMATION
t.b.d.
Managing genetic samples and information - access, security and privacy
Sorensen
Information technology and the medical record - standards and sharing
t.b.d.
Medical information and the insurance/employment arenas
Keller
Post market medical device surveillance - Rights, responsibilities and liabilities
Questions and Answers session
Afternoon Session (14:30-18:00): THE TRANSLATIONAL PROCESS
Desiderio
Institutional Review Board and informed consent issues
Gevers
Standard of care, wrongful life cases, the limits of informed consent in modern genetics
Alwan
From research to applications in patient care
Luzzatto
Africa and Global Health
Santosuosso
Transnational rules for scientific research
Federico
The Olive Tree project, a cooperation across Mediterranean countries for improving cancer registration
Questions and Answers session
Sunday, March 8th
Morning Session (9:00-13:00): BIOETHICS
Gillon
Genetic research - the ethical and legal framework
Siegal
Population Genomics - Ethics, law and policy
A. Casado da Rocha
Biobanks - comparative ethico-legal analysis
Woods
Ethical issues and public understanding
Concluding session

DEPARTURE

 

 
 
Organized by: European Genetics Foundation
Invited Speakers:
DIRECTORS:
Kenneth H. Keller (Bologna, Italy), Giovanni Romeo (Bologna, Italy)
 
INVITED SPEAKERS:
Ala Alwan (Geneva, CH), Jean Jacques Cassiman (Leuven, BE), Stephen Desiderio (Baltimore, USA), Massimo Federico (Modena, Italy), Luciano Garofano (Parma, IT), Giuliana Gemelli (Bologna, IT), Jef K.M. Gevers (Amsterdam, NL), Raanan Gillon (London, UK), Helena Kaariainen (Turku, FI), Kenneth H. Keller (Bologna, IT), Roberto Lattanzi (Rome, IT), Lucio Luzzatto (Florence, IT), Gert Matthijs (Leuven, BE), Antonio Casado da Rocha (San Sebastian, ES), Stefano Rodotà  (Rome, IT), Giovanni Romeo (Bologna, IT), Amedeo Santosuosso (Milan, IT), Gil Siegal (Kiryat O
 
Deadline for Abstracts: xx
 
Registration:

 

only on-line registration is available on EGF website www.eurogene.org

 

E-mail: giuseppe.curcio@eurogene.org
 
   
 
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