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| HUM-MOLGEN -> Events -> Courses and Workshops | ||||||||||||||||
| Health-Related Quality of Life Assessment in Respiratory Disease | ||||||||||||||||
| June 05, 2001 | ||||||||||||||||
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MAPI Research Institute, Berlin, Germany 2001/09/21 SESSION I: Health-Related Quality of Life (HRQoL) in Respiratory Disease 8:30-9:00 Registration 9:00-9:15 Welcome 9:15-10:15 Elizabeth Juniper Health-Related Quality of Life (HRQoL) -Definition of HRQoL -Taxonomy of instruments Theory of Measurement of HRQoL -How do we measure HRQoL? -Reliability, validity, and responsiveness 10:15-10:30 Coffee break 10:30-11:30 Thys Van der Molen Chronic Obstructive Pulmonary Disease (COPD) and Health Status Instruments -COPD Symptom Control Questionnaire (CSCQ) -Relation between HRQoL and symptoms -Health status 11:30-12:30 Elizabeth Juniper Asthma and HRQoL -Problems important to adults and children with asthma -The Asthma Quality of Life Questionnaire (AQLQ): original, standardised and mini -The Paediatric Asthma Quality of Life Questionnair(PAQLQ): original and standardised Lunch SESSION II: Practical Aspects from Clinical Trials to the Patient 13:30-14:00 Isabelle Mear Linguistic Validation of HRQoL Questionnaires -Methodology -Cross-cultural equivalence 14:00-15:00 Martin Price Integration of HRQoL Assessment into Clinical Trials -Why and how is HRQoL measured in clinical trials? -Advantages and disadvantages of alternative versions -Interviewer/Self/Telephone/Electronic -Practical examples -Training of co-ordinators and clinical staff -Missing data 15:00-15:45 Elizabeth Juniper Interpretation of HRQoL Data -Minimal Important Difference (MID) -Number Needed to treat (NNT) 15:45-16:00 Coffee Break 16:00-16:20 Elizabeth Juniper Measuring Asthma Control -Asthma Control Questionnaire (ACQ) -Strengths and weaknesses of diaries versus questionnaire 16:20-16:45 Thys Van der Molen Role of HRQoL in Clinical Practice -Measuring HRQoL and CSCQ in the routine management of patients 16:45-17:30 All Speakers Panel Discussion Completion of course evaluation sheet |
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| Organized by: | MAPI Research Institute | |||||||||||||||
| Invited Speakers: | Professor Elizabeth Juniper, Professor Thys Van der Molen, Isabelle Mear, MA, Dr Martin J. Price |
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| Deadline for Abstracts: | no abstracts necessary for this course on 2001/09/21 | |||||||||||||||
| Registration: | To register for this course or for more information on this course or other MAPI Research Institute courses, please contact: Vanina Boukaka MAPI Research Institute, 27 rue de la Villette, 69003 Lyon, France Tel: +33 (0) 4 72 13 66 67; Fax: +33 (0) 4 72 13 69 50; E-mail: vboukaka@mapi.fr Or refer to our website:http://www.mapi-research-inst.com Non-refundable registration fee: 50 Euros. Deadline for Registration: August 21st, 2001 |
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| E-mail: | vboukaka@mapi.fr | |||||||||||||||
| Posted by: | Boukaka Vanina | |||||||||||||||
| Host: | lsi67.dtr.fr | |||||||||||||||
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