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  Health-Related Quality of Life Assessment in Respiratory Disease  
  June 05, 2001

Medical Research (others)

 
     
  MAPI Research Institute, Berlin, Germany
2001/09/21


SESSION I: Health-Related Quality of Life (HRQoL) in Respiratory Disease


8:30-9:00 Registration

9:00-9:15 Welcome

9:15-10:15 Elizabeth Juniper
Health-Related Quality of Life (HRQoL)
-Definition of HRQoL
-Taxonomy of instruments
Theory of Measurement of HRQoL
-How do we measure HRQoL?
-Reliability, validity, and responsiveness

10:15-10:30 Coffee break

10:30-11:30 Thys Van der Molen
Chronic Obstructive Pulmonary Disease (COPD) and Health Status Instruments
-COPD Symptom Control Questionnaire (CSCQ)
-Relation between HRQoL and symptoms
-Health status

11:30-12:30 Elizabeth Juniper
Asthma and HRQoL
-Problems important to adults and children with asthma
-The Asthma Quality of Life Questionnaire (AQLQ): original, standardised and mini
-The Paediatric Asthma Quality of Life Questionnair(PAQLQ): original and standardised

Lunch

SESSION II: Practical Aspects from Clinical Trials to the Patient


13:30-14:00 Isabelle Mear
Linguistic Validation of HRQoL Questionnaires
-Methodology
-Cross-cultural equivalence

14:00-15:00 Martin Price
Integration of HRQoL Assessment into Clinical Trials
-Why and how is HRQoL measured in clinical trials?
-Advantages and disadvantages of alternative versions
-Interviewer/Self/Telephone/Electronic
-Practical examples
-Training of co-ordinators and clinical staff
-Missing data

15:00-15:45 Elizabeth Juniper
Interpretation of HRQoL Data
-Minimal Important Difference (MID)
-Number Needed to treat (NNT)

15:45-16:00 Coffee Break


16:00-16:20 Elizabeth Juniper
Measuring Asthma Control
-Asthma Control Questionnaire (ACQ)
-Strengths and weaknesses of diaries versus questionnaire

16:20-16:45 Thys Van der Molen
Role of HRQoL in Clinical Practice
-Measuring HRQoL and CSCQ in the routine management of patients


16:45-17:30 All Speakers
Panel Discussion

Completion of course evaluation sheet
 
 
Organized by: MAPI Research Institute
Invited Speakers: Professor Elizabeth Juniper, Professor Thys Van der Molen, Isabelle Mear, MA, Dr Martin J. Price
 
Deadline for Abstracts: no abstracts necessary for this course on 2001/09/21
 
Registration:
To register for this course or for more information on this course or other MAPI Research Institute courses, please contact:
Vanina Boukaka
MAPI Research Institute, 27 rue de la Villette, 69003 Lyon, France
Tel: +33 (0) 4 72 13 66 67; Fax: +33 (0) 4 72 13 69 50; E-mail: vboukaka@mapi.fr
Or refer to our website:http://www.mapi-research-inst.com

Non-refundable registration fee: 50 Euros.

Deadline for Registration: August 21st, 2001
E-mail: vboukaka@mapi.fr
 
  Posted by:   Boukaka Vanina  
Host: lsi67.dtr.fr
   
 
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