HUM-MOLGEN archive: DIAG: 4 patient requests

************************************************************** HUM-MOLGEN DIAGnostics/Clinical Research ************************************************************** This DIAG message contains 4 PATIENT REQUEST(s): 1) Information on MERKEL CELL CARCINOMA 2) Information on NF2 3) Information on FIBROMYALGIA AND CHRONIC FATIQUE SYNDROME 4) Information on NEUROCANTHOCYTOSIS Rick Martin MD, Assistant Editor, Human Molecular Genetics Network Diagnostics/Clinical Research Section Carlo Gambacorti MD, Editor Human Molecular Genetics Network Diagnostics/Clinical Research Section ************************************************************** ************************************************************** ************************************************************** 1) Information on Merkel Cell Carcinoma ------------------------------------------------------------ Dear sir, I have a friend with Merkel cell carcinoma. Does anyone do any research on it and what treatment is suggested? Thanks APPARENT PATIENT LOCATION - Malaysia PLEASE REPLY DIRECTLY TO HUMAN MOLECULAR GENETICS NETWORK ********************************************************************* 2) Information on NF2 ------------------------------------------------------------ Hi- my 14-yr-old daughter has NF2. I would be interested in receiving any info or new developments in regards to NF2. Thanks! APPARENT PATIENT LOCATION - USA PLEASE REPLY DIRECTLY TO HUMAN MOLECULAR GENETICS NETWORK ********************************************************************* 3) Information on FIBROMYALGIA AND CHRONIC FATIQUE ---------------------------------------------------------------------------- ----------- To Whom It May Concern: I am writing from Canada, and have been diagnosed as having "Fibromyalgia & Chronic Fatigue Syndrome." I had heard that there might be a source through the University of Newcastle, Au., that a Mr. Hugh Dunstan, may have "isolated molecular evidence for CFS." I've tried several avenues to try and find out if there is any research on the topic mentioned, and if so, could I either get in contact with the sources doing the research or any publications on any "molecular evidence for CFS?" I look forward to hearing from whomever may receive this E-mail and may be able to answer my questions. APPARENT PATIENT LOCATION - CANADA PLEASE REPLY DIRECTLY TO HUMAN MOLECULAR GENETICS NETWORK ********************************************************************* 4) Information on NEUROACANTHOCYTOSIS ---------------------------------------------------------------------------- ----------- My sister has just been diagnosed with neuroacanthocytosis. Needless to say it has been devasting to our entire family. Dr Lynch, at the University of Pennsylvania Hospital explained to me that this disease is extremely rare. I need to get as much information on the disease as possible in order to better understand what is happeneing to my sister. I would greatly appreciate it if you could emial me any information you have on the disease. I would also like to , if possible get in contact with other families dealing with this disease. I greatly appreciate your time. APPARENT PATIENT LOCATION - USA PLEASE REPLY DIRECTLY TO HUMAN MOLECULAR GENETICS NETWORK ********************************************************************* ------------------------------------------------------------- HUM-MOLGEN - Internet Communication Forum in Human Genetics E-mail: HUM-MOLGEN@nic.surfnet.nl WWW: http://www.informatik.uni-rostock.de/HUM-MOLGEN/ Phone: 020-566 4598 (The Netherlands), (206) 386-2101 (USA) Fax: 020-691 6521 (The Netherlands), (206) 386-2555 (USA) --------------------------------------------------------------- "copyright HUM-MOLGEN"