HUM-MOLGEN archive: ETHI: Genetic counselors

This ETHI message contains 4 subsections: Each is a response to the same original post. XXXXXXXXXXXXXXXXXXXXXX 1. From: Graeme Suthers <gsuthers@MAD.ADELAIDE.EDU.AU> The Human Genetics Society of Australasia has a comprehensive training and accreditation program for Genetic Counsellors. What we lack are the funds to employ more graduates of this program in our genetic clinics! You could obtain further details of the program from Secretary of the HGSA. HGSA Secretariat Sydney House 556 Crown Street Surry Hills NSW 2010 AUSTRALIA tel 61-2-319 4893 fax 61-2-698 8121 Yours sincerely, Graeme Suthers ---------------------------------------------------------------------- Dr Graeme Suthers tel (int)-61-8-204 7375 Department of Medical Genetics fax (int)-61-8-204 6088 Women's & Children's Hospital North Adelaide SA 5006 AUSTRALIA ---------------------------------------------------------------------- <<< email: gsuthers@medicine.adelaide.edu.au >>> ---------------------------------------------------------------------- XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX 2. The situation in the Netherlands is pretty well organized although here too we will be facing a shortage of genetic counsellors, given the developments ahead. The Netherlands are subdivided into seven regions, which each have their own Clinical Genetic Center, staffed by several counsellors. MDs can enter a special training of 2 years after which they will obtain their officially acknowledged "Clinical Geneticist" mark. Genetic testing by institutes other than the Clinical Genetic Centers and their associated DNA laboratories is strictly forbidden here, and it is therefore impossible to commercialize this activity in the Netherlands. Consequently, the DNA test is part of the Nathional Health Insurance Program, and counsellees will not have to pay for it themselves (unless there is no medical indication and they insist on having it). Currently, the seven DNA laboratories are implementing the same standards as used in forensic laboratories. I hope this gives some fuel to the discussion. ====================================================================== Dr. Peter Devilee Dept. of Human Genetics Direct tel.: +31 71 27 61 17 Wassenaarseweg 72 Fax: +31 71 27 60 75 2333 AL Leiden - The Netherlands UNIVERSITY OF LEIDEN ====================================================================== XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX 3. From: Osman El-maarri <elmaari@BOUN.EDU.TR> Here in Turkey at the department of Molecular biology and genetics (Bogazici University-Istanbul) we are offering different Prenatal diagnosis programs for different common inherited deseases (like cystic fibrosis, hemophilia, DMD,...etc) Osman El-Maarri Department of Molecular Biology and Genetics Bogazici University-Istanbul XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX 4. From: Carlo Gambacorti <GAMBACORTI@icil64.cilea.it> Approved-By: GAMBACORTI@ICIL64.CILEA.IT not in Italy. Carlo Gambacorti