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European School of Genetic Medicine & Johns Hopkins University, Bologna SAIS Center, The Johns Hopkins University SAIS Bologna Center, Bologna (Italy)
6th-8th March 2009
PROGRAMME: Friday, March 6th Morning Session (9:00-13:00): GENETICS AND SOCIETY Romeo, Keller General introduction to the course Rodotà Privacy issues in genetics Lattanzi Managing genetic databases Garofano Genetic database for security purpose - standards and regulations in Europe Gemelli The contribution of the Rockfeller Foundation to the construction of the Global Health Policy Questions and Answers session Afternoon Session (14:30-18:00): GENETIC TESTING AND COUNSELLING Romeo The medical genetics lab and clinic: research and diagnosis Cassiman Introduction to Genetic Testing Matthijs Quality management in genetic testing Kaariainen Quality management of genetic counselling Questions and Answers session Round table: BRCA1 patent in Europe: update and implications Saturday, March 7th Morning Session (9:00-13:00): USE OF MEDICAL INFORMATION t.b.d. Managing genetic samples and information - access, security and privacy Sorensen Information technology and the medical record - standards and sharing t.b.d. Medical information and the insurance/employment arenas Keller Post market medical device surveillance - Rights, responsibilities and liabilities Questions and Answers session Afternoon Session (14:30-18:00): THE TRANSLATIONAL PROCESS Desiderio Institutional Review Board and informed consent issues Gevers Standard of care, wrongful life cases, the limits of informed consent in modern genetics Alwan From research to applications in patient care Luzzatto Africa and Global Health Santosuosso Transnational rules for scientific research Federico The Olive Tree project, a cooperation across Mediterranean countries for improving cancer registration Questions and Answers session Sunday, March 8th Morning Session (9:00-13:00): BIOETHICS Gillon Genetic research - the ethical and legal framework Siegal Population Genomics - Ethics, law and policy A. Casado da Rocha Biobanks - comparative ethico-legal analysis Woods Ethical issues and public understanding
DEPARTURE
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Organized by:
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European Genetics Foundation |
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Invited Speakers:
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DIRECTORS: Kenneth H. Keller (Bologna, Italy), Giovanni Romeo (Bologna, Italy) INVITED SPEAKERS: Ala Alwan (Geneva, CH), Jean Jacques Cassiman (Leuven, BE), Stephen Desiderio (Baltimore, USA), Massimo Federico (Modena, Italy), Luciano Garofano (Parma, IT), Giuliana Gemelli (Bologna, IT), Jef K.M. Gevers (Amsterdam, NL), Raanan Gillon (London, UK), Helena Kaariainen (Turku, FI), Kenneth H. Keller (Bologna, IT), Roberto Lattanzi (Rome, IT), Lucio Luzzatto (Florence, IT), Gert Matthijs (Leuven, BE), Antonio Casado da Rocha (San Sebastian, ES), Stefano Rodotà (Rome, IT), Giovanni Romeo (Bologna, IT), Amedeo Santosuosso (Milan, IT), Gil Siegal (Kiryat O |
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Deadline for Abstracts:
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xx
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Registration:
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only on-line registration is available on EGF website www.eurogene.org
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E-mail:
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giuseppe.curcio@eurogene.org
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