home   genetic news   bioinformatics   biotechnology   literature   journals   ethics   positions   events   sitemap
 
  HUM-MOLGEN -> Events -> Meetings and Conferences  
 

6th European Conference on Rare Diseases and Orphan Products

 
  April 09, 2012  
     
 
MCE Management Centre Europe , Brussels, Belgium
May 23 2012 9:00AM - May 25 2012 5:30PM


The European Conference on Rare Diseases & Orphan Products is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders - academics, health care professionals, industry, policy makers, patients’ representatives.

It is an annual event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

It covers research, development of new treatments, health care, social care, information, public health and support at European, national and regional levels.

It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.

Key Topics

  • To disseminate the most up-to-date health information related to the rare disease environment to all relevant stakeholders (patients and patients’ representatives, academics, health care professionals, industry and policy makers)
  • To demonstrate the importance of EU actions in the field of rare diseases and review progress made to date
  • To elaborate strategies and mechanisms for developing further exchange of information between stakeholders: people living with rare diseases, volunteers, health professionals, policy makers, researchers and industry at national and EU levels
  • To exchange knowledge and best practices on all relevant health issues related to the rare disease environment
  • To sustain efforts for rare disease policies at both the European and the national level
  • To stimulate dialogue on policies for rare diseases in some of the Member States having recently joined the EU
  • To present specific, achievable objectives at both European and national levels in order to reduce health inequalities for rare disease patient
Event Code 12106
 
 
Organized by: DIA Europe
Invited Speakers: See website for speaker information
 
Deadline for Abstracts: Call contact
 
Registration: DIA Europe
Sandra Gsponer
Event Manager
Tel : +41 61 225 51 77 
Sandra.Gsponer@diaeurope.org
E-mail: sandra.gsponer@diaeurope.org
 
   
 
home   genetic news   bioinformatics   biotechnology   literature   journals   ethics   positions   events   sitemap
 
 
 

Generated by meetings and positions 5.0 by Kai Garlipp
WWW: Kai Garlipp, Frank S. Zollmann.
7.0 © 1995- HUM-MOLGEN. All rights reserved. Liability, Copyright and Imprint.