home   genetic news   bioinformatics   biotechnology   literature   journals   ethics   positions   events   sitemap
 
  HUM-MOLGEN -> Events -> Meetings and Conferences  
 

HUGO Symposium on Genomics and Ethics, Law and Society

 
  September 03, 2009  
     
 
Human Genome Organisation, CICG, Geneva, Switzerland
1st November - 3rd November 2009


On 1-3 November 2009, we are organising our latest episode of the HUGO-WHO Genomics and Global Health Symposia Series on Genomics and Ethics, Law and Society with a special focus on Sequencing of Individual Genomes: Impact on Society and Ethics (GELS 2009) to be held in the beautiful city of Geneva in Switzerland, a perfect background with the establishing of the headquarters of the United Nations, WHO and other international organisations.  This conference is co-sponsored by the University of Geneva, in celebration of its 450th anniversary of its establishment, and the World Health Organisation (WHO).


Soon an individual's genome can be sequenced at accessible cost. Like the availability of books provided by the printing press, the ease of communications by cell phones, and the access to information via the internet, access to information that is broad, deep, and personally significant changes society, its laws, and its politics. Complete sequence information of individual genomes raises questions about utility, identity, privacy and comprehension. The concept of open source genetic information is a reality that will tax the legal framework just as much as internet freedom challenges legal tenets. Direct to Consumer genomics where a physician opinion is bypassed will become more common.

The sequencing of genomes provides the substrate for synthetic biology in which whole organisms can be created de novo through stitching DNA together into entire genomes. This symposium will explore the ethical, societal, and legal issues involving the accessibility of fast, inexpensive, and complete genomic sequencing.

Tentative Programme (Single Track Programme)

Day One - 1 Nov 2009 (Sunday)

8:00 AM

Registration

8:30 AM

Opening Address

9:00 AM

Welcome Address

9:10 AM – 12:05 PM

Session 1 – Science & its Capabilities
Chair: Edison Liu

Olufunmilayo Olopade
Professor of Medicine and Human Genetics
Director, Cancer Risk Clinic
MacArthur Awardee
Department of Human Genetics
University of Chicago

Edison Liu
Executive Director, Genome Institute of Singapore (Biomedical Sciences Institutes)
Professor of Medicine, National University of Singapore
Special Advisor to the President, National University of Singapore
Director, Singapore Tissue Network

Klaus Lindpaintner
Roche Molecular Medicine Laboratories
F. Hoffmann-La Roche Ltd.
PDL - Global Molecular Medicine Laboratories

Mark McCarthy
Robert Turner Professor of Diabetes
Oxford Centre for Diabetes, Endocrinology and Metabolism

12:05 PM – 1:35 PM

Lunch @ CICG Cafeteria / Poster Session 1

1:35 PM – 5:30 PM

Session 2 – Personal Genomics: Redefining Privacy, Choice and the Internet
Chair: Ruth Chadwick

Ruth Chadwick
Director
ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) Cardiff University
Chairperson, HUGO Ethics Committee

Helen Nissenbaum
Professor 
Media, Culture & Communication
New York University

Linda Avey
Co-Founder
23andMe

Jeantine Lunshof
Assistant Professor
Maastricht University
European Centre for Public Health Genomics

7:30 PM – 10:00PM

Conference Dinner at InterContinental Geneve

Day Two - 2 Nov 2009 (Monday)

9:00 AM – 11:40 PM

Session 3 – Genetic Determinism, Discrimination, Exceptionalism and Selection
Chair: Stylianos Antonarakis

Stylianos Antonarakis
Professor and Chairman
Department of Genetic Medicine and Development
University of Geneva Medical School & University Hospitals of Geneva

Alastair Campbell
Director
Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, NUS, Singapore
Chen Su Lan Centennial Professor of Medical Ethics, NUS, Singapore

Thomas Murray
President and CEO
The Hastings Center

David Cox
Senior Vice President and Chief Scientific Officer
Pfizer, Inc.
Biotherapeutics and Bioinnovation Center
Target Generation Unit

11:40 AM – 12:30 PM

Poster Session 2 

12:30 PM – 2:00 PM

Lunch @ CICG Cafeteria 

2:00 PM – 5:00 PM

Session 4 – Discussion Forum 
Chair: Edison Liu, Ruth Chadwick, Bartha Maria Knoppers

6:00 PM – 8:00PM

Public Lecture at University of Geneva

Stylianos Antonarakis & Bartha Maria Knoppers

Day Three - 3 Nov 2009 (Tuesday)

9:00 AM – 11:40 PM

Session 5 – Equity and Justice: Access & Participation in the Developing World
Chair: Ala Alwan

Ala Alwan
Assistant Director-General, World Health Organisation
Noncommunicable Disease and Mental Health

Abdallah Daar
Professor of Public Health Science and of Surgery , University of Toronto
Director of Ethics and Commercialization, McLaughlin-Rotman Centre for Global Health
Member, Ethics Committee, HUGO
Chair, Board of Advisors, UN University International Institute for Global Health
Chair, Global Alliance for Chronic Diseases

Gerardo Jiménez-Sánchez
Director General
Instituto Nacional de Medicina Genómica

Partha Majumdar
Professor & Head
Human Genetics Unit
Indian Statistical Institute

Raj Ramesar
Professor and Head of the Division of Human Genetics
University of Cape Town

11:40 AM – 12:00 PM

Poster Session 3

12:00 PM – 1:30 PM

Lunch @ CICG Cafeteria

1:30 AM – 4:05 PM

Session 6 – Open Access, Open Markets: Intellectual Property?
Chair: Bartha Maria Knoppers

Charles Auffray
Equipe Genexpress - SYSTEMOSCOPE
Génomique Fonctionnelle et Biologie Systémique pour la Santé
Functional Genomics and Systems Biology for Health
CNRS Institut des Sciences

James Toupin
General Counsel
United States Patent and Trademark Office (USPTO)

Timothy Caulfield
Canada Research Chair in Health Law & Policy
Senior Health Scholar, Alberta Heritage Foundation for Medical Research
Professor, Faculty of Law and School of Public Health
Research Director, Health Law Institute

Bartha Maria Knoppers
Professor
Director , Centre of Genomics and Policy, Faculty of Medicine
Department of Human Genetics McGill University
Former Chairperson, Human Genome Organisation (International Ethics Committee)

Philippe Ducor
Attorneys at Law
B.M.G Advocats
Associate Professor in the Department of Commercial Law
Director of the Interdisciplinary Master in Life Sciences Law
University de Geneve

4:05 PM – 4:30 PM

Closing

 
 
Organized by: Human Genome Organisation
Invited Speakers:

Stylianos E. Antonarakis
Professor and Chairman
Department of Genetic Medicine and Development
University of Geneva Medical School & University Hospitals of Geneva

Read More

Charles Auffray
Equipe Genexpress - SYSTEMOSCOPE
Génomique Fonctionnelle et Biologie Systémique pour la Santé
Functional Genomics and Systems Biology for Health
CNRS Institut des Sciences

Read More     Abstract

Alastair Campbell
Director
Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, NUS, Singapore
Chen Su Lan Centennial Professor of Medical Ethics, NUS, Singapore

Read More     Abstract

Timothy Caulfield
Canada Research Chair in Health Law & Policy
Senior Health Scholar,
Alberta Heritage Foundation for Medical Research Professor,
Faculty of Law and School of Public Health Research Director,
Health Law Institute

Read More     Abstract

Ruth Chadwick
Director
ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) Cardiff University
Chairperson, HUGO Ethics Committee

Read More     Abstract

Bartha-Maria Knoppers
Professor
Director, Centre of Genomics and Policy Faculty of Medicine
Dept. of Human Genetics, McGill University
Former Chairperson, Human Genome Organisation (International Ethics Committee)

Read More     Abstract

Mark McCarthy
Robert Turner Professor of Diabetes
Oxford Centre for Diabetes, Endocrinology and Metabolism

Read More     Abstract

Partha Majumdar
Professor & Head, Human Genetics Unit
Indian Statistical Institute
Director, TCG-ISI Centre for Population
Genomics, Kolkata

Read More

Thomas H. Murray
President, The Hastings Center
Ethics Committee, Human Genome Organization
Board of Directors
Charity Navigator
Physicians and Lawyers for National Drug Policy
Consulting Editor in Bioethics, Johns Hopkins University Press

 Read More

Helen Nissenbaum
Professor
Media, Culture & Communication
New York University

Read More

Edison T. Liu
Executive Director, Genome Institute of Singapore (Biomedical Sciences Institutes)
Professor of Medicine, National University of Singapore
Special Advisor to the President, National University of Singapore
Director, Singapore Tissue Network

 Read More

Abdallah Daar
Professor of Public Health Science and of Surgery , University of Toronto
Director of Ethics and Commercialization, McLaughlin-Rotman Centre for Global Health
Member, Ethics Committee, HUGO
Chair, Board of Advisors, UN University International Institute for Global Health
Chair, Global Alliance for Chronic Diseases

 Read More

Gerardo Jiménez-Sánchez
Director General
National Institute of Genomic Medicine, Mexico
Instituto Nacional de Medicina Genómica

Read More     Abstract

Klaus Lindpaintner
Vice President and Director, Roche Genetics
F. Hoffman-La Roche Ltd.

Read More     Abstract

Olufunmilayo Olopade
Professor of Medicine and Human Genetics
Director, Cancer Risk Clinic

Read More     Abstract

Linda Avey
Co-Founder
23andMe

Read More

David Cox
Senior Vice President and CSO
Biotherapeutics and Bioinnovation Center
Pfizer Inc.

Read More

Raj S Ramesar
Professor and Head
Division of Human Genetics
MRC Human Genetics Research Unit
Institute for Infectious Diseases and Molecular Medicine
Faculty of Health Sciences
University of Cape Town and Allied Hospitals

Read More

Jeantine Lunshof
Assistant Professor
European Centre for Public Health Genomics
Maastricht University &
Department of Molecular Cell Physiology
VU University Amsterdam

Read More

Philippe Ducor
Associate Professor in the Department of Commercial Law
Director of the Interdisciplinary Master in Life Sciences Law
Université de Genéve

Read More

James Toupin
General Counsel
United States Patent and Trademark Office (USPTO)

Read More

 

 

 
Deadline for Abstracts: 31 August 2009
 
Registration:

Who should attend?

  • Scientists focus in genomics and genetics research
  • Bio-ethicists, sociologists, anthropologists
  • Government officials, policy makers from Health Ministries or departments
  • Legal advisors, Legal practicioners interested in legal matters relating to new technologies & policies in human genome sequencing, personalised sequencing, personalised medicine
  • Executives from Insurance companies and pharmaceutical companies
  • Academia in human genetics and genomics
  • Researchers interested in sequencing research, technologies, drug discoveries

How much is the registration fee?

  • Standard Registration Fee : CHF890
  • HUGO Member Registration Fee : CHF715
  • Student Registration Fee : CHF300 (Conference dinner is not included for this rate)
    To claim student discounted registration fee, kindly email your University ID or letter of proof to hugoadmin@gis.a-star.edu.sg

What does the registration fee include?

  • Entrance to symposium on 1st – 3rd November 2009
  • Daily refreshment and snacks
  • Gala Dinner
  • Symposium proceedings

HUGO is happy to discuss registration waivers with young scholars and young scientists to attend GELS 2009. Please contact honyf@gis.a-star.edu.sg for further details and discussion.

For HUGO members, the EARLY BIRD Registration Fee applicable is CHF500!

Go to our event website now for online registration!

E-mail: hugoadmin@gis.a-star.edu.sg
 
   
 
home   genetic news   bioinformatics   biotechnology   literature   journals   ethics   positions   events   sitemap
 
 
 

Generated by meetings and positions 5.0 by Kai Garlipp
WWW: Kai Garlipp, Frank S. Zollmann.
7.0 © 1995- HUM-MOLGEN. All rights reserved. Liability, Copyright and Imprint.