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Human Genome Organisation, CICG, Geneva, Switzerland
1st November - 3rd November 2009
On 1-3 November 2009, we are organising our latest episode of the HUGO-WHO Genomics and Global Health Symposia Series on Genomics and Ethics, Law and Society with a special focus on Sequencing of Individual Genomes: Impact on Society and Ethics (GELS 2009) to be held in the beautiful city of Geneva in Switzerland, a perfect background with the establishing of the headquarters of the United Nations, WHO and other international organisations. This conference is co-sponsored by the University of Geneva, in celebration of its 450th anniversary of its establishment, and the World Health Organisation (WHO).
Soon an individual's genome can be sequenced at accessible cost. Like the availability of books provided by the printing press, the ease of communications by cell phones, and the access to information via the internet, access to information that is broad, deep, and personally significant changes society, its laws, and its politics. Complete sequence information of individual genomes raises questions about utility, identity, privacy and comprehension. The concept of open source genetic information is a reality that will tax the legal framework just as much as internet freedom challenges legal tenets. Direct to Consumer genomics where a physician opinion is bypassed will become more common. The sequencing of genomes provides the substrate for synthetic biology in which whole organisms can be created de novo through stitching DNA together into entire genomes. This symposium will explore the ethical, societal, and legal issues involving the accessibility of fast, inexpensive, and complete genomic sequencing. Tentative Programme (Single Track Programme) Day One - 1 Nov 2009 (Sunday) | 8:00 AM | Registration | 8:30 AM | Opening Address | 9:00 AM | Welcome Address | 9:10 AM – 12:05 PM | Session 1 – Science & its Capabilities Chair: Edison Liu Olufunmilayo Olopade Professor of Medicine and Human Genetics Director, Cancer Risk Clinic MacArthur Awardee Department of Human Genetics University of Chicago Edison Liu Executive Director, Genome Institute of Singapore (Biomedical Sciences Institutes) Professor of Medicine, National University of Singapore Special Advisor to the President, National University of Singapore Director, Singapore Tissue Network Klaus Lindpaintner Roche Molecular Medicine Laboratories F. Hoffmann-La Roche Ltd. PDL - Global Molecular Medicine Laboratories Mark McCarthy Robert Turner Professor of Diabetes Oxford Centre for Diabetes, Endocrinology and Metabolism | 12:05 PM – 1:35 PM | Lunch @ CICG Cafeteria / Poster Session 1 | 1:35 PM – 5:30 PM | Session 2 – Personal Genomics: Redefining Privacy, Choice and the Internet Chair: Ruth Chadwick Ruth Chadwick Director ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) Cardiff University Chairperson, HUGO Ethics Committee Helen Nissenbaum Professor Media, Culture & Communication New York University Linda Avey Co-Founder 23andMe
Jeantine Lunshof Assistant Professor Maastricht University European Centre for Public Health Genomics
| 7:30 PM – 10:00PM | Conference Dinner at InterContinental Geneve | Day Two - 2 Nov 2009 (Monday) | 9:00 AM – 11:40 PM | Session 3 – Genetic Determinism, Discrimination, Exceptionalism and Selection Chair: Stylianos Antonarakis Stylianos Antonarakis Professor and Chairman Department of Genetic Medicine and Development University of Geneva Medical School & University Hospitals of Geneva Alastair Campbell Director Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, NUS, Singapore Chen Su Lan Centennial Professor of Medical Ethics, NUS, Singapore Thomas Murray President and CEO The Hastings Center
David Cox Senior Vice President and Chief Scientific Officer Pfizer, Inc. Biotherapeutics and Bioinnovation Center Target Generation Unit
| 11:40 AM – 12:30 PM | Poster Session 2 | 12:30 PM – 2:00 PM | Lunch @ CICG Cafeteria | 2:00 PM – 5:00 PM | Session 4 – Discussion Forum Chair: Edison Liu, Ruth Chadwick, Bartha Maria Knoppers
| 6:00 PM – 8:00PM | Public Lecture at University of Geneva Stylianos Antonarakis & Bartha Maria Knoppers
| Day Three - 3 Nov 2009 (Tuesday) | 9:00 AM – 11:40 PM | Session 5 – Equity and Justice: Access & Participation in the Developing World Chair: Ala Alwan Ala Alwan Assistant Director-General, World Health Organisation Noncommunicable Disease and Mental Health Abdallah Daar Professor of Public Health Science and of Surgery , University of Toronto Director of Ethics and Commercialization, McLaughlin-Rotman Centre for Global Health Member, Ethics Committee, HUGO Chair, Board of Advisors, UN University International Institute for Global Health Chair, Global Alliance for Chronic Diseases
Gerardo Jiménez-Sánchez Director General Instituto Nacional de Medicina Genómica Partha Majumdar Professor & Head Human Genetics Unit Indian Statistical Institute
Raj Ramesar Professor and Head of the Division of Human Genetics University of Cape Town
| 11:40 AM – 12:00 PM | Poster Session 3 | 12:00 PM – 1:30 PM | Lunch @ CICG Cafeteria | 1:30 AM – 4:05 PM | Session 6 – Open Access, Open Markets: Intellectual Property? Chair: Bartha Maria Knoppers Charles Auffray Equipe Genexpress - SYSTEMOSCOPE Génomique Fonctionnelle et Biologie Systémique pour la Santé Functional Genomics and Systems Biology for Health CNRS Institut des Sciences
James Toupin General Counsel United States Patent and Trademark Office (USPTO) Timothy Caulfield Canada Research Chair in Health Law & Policy Senior Health Scholar, Alberta Heritage Foundation for Medical Research Professor, Faculty of Law and School of Public Health Research Director, Health Law Institute Bartha Maria Knoppers Professor Director , Centre of Genomics and Policy, Faculty of Medicine Department of Human Genetics McGill University Former Chairperson, Human Genome Organisation (International Ethics Committee) Philippe Ducor Attorneys at Law B.M.G Advocats Associate Professor in the Department of Commercial Law Director of the Interdisciplinary Master in Life Sciences Law University de Geneve
| 4:05 PM – 4:30 PM | Closing |
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Organized by:
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Human Genome Organisation |
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Invited Speakers:
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| Stylianos E. Antonarakis Professor and Chairman Department of Genetic Medicine and Development University of Geneva Medical School & University Hospitals of Geneva Read More | | | Charles Auffray Equipe Genexpress - SYSTEMOSCOPE Génomique Fonctionnelle et Biologie Systémique pour la Santé Functional Genomics and Systems Biology for Health CNRS Institut des Sciences Read More Abstract | | | Alastair Campbell Director Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, NUS, Singapore Chen Su Lan Centennial Professor of Medical Ethics, NUS, Singapore Read More Abstract | | | Timothy Caulfield Canada Research Chair in Health Law & Policy Senior Health Scholar, Alberta Heritage Foundation for Medical Research Professor, Faculty of Law and School of Public Health Research Director, Health Law Institute Read More Abstract | | | Ruth Chadwick Director ESRC Centre for Economic and Social Aspects of Genomics (Cesagen) Cardiff University Chairperson, HUGO Ethics Committee Read More Abstract | | | Bartha-Maria Knoppers Professor Director, Centre of Genomics and Policy Faculty of Medicine Dept. of Human Genetics, McGill University Former Chairperson, Human Genome Organisation (International Ethics Committee) Read More Abstract | | | Mark McCarthy Robert Turner Professor of Diabetes Oxford Centre for Diabetes, Endocrinology and Metabolism Read More Abstract | | | Partha Majumdar Professor & Head, Human Genetics Unit Indian Statistical Institute Director, TCG-ISI Centre for Population Genomics, Kolkata Read More | | | Thomas H. Murray President, The Hastings Center Ethics Committee, Human Genome Organization Board of Directors Charity Navigator Physicians and Lawyers for National Drug Policy Consulting Editor in Bioethics, Johns Hopkins University Press Read More | | | Helen Nissenbaum Professor Media, Culture & Communication New York University Read More | | | Edison T. Liu Executive Director, Genome Institute of Singapore (Biomedical Sciences Institutes) Professor of Medicine, National University of Singapore Special Advisor to the President, National University of Singapore Director, Singapore Tissue Network
Read More | | | Abdallah Daar Professor of Public Health Science and of Surgery , University of Toronto Director of Ethics and Commercialization, McLaughlin-Rotman Centre for Global Health Member, Ethics Committee, HUGO Chair, Board of Advisors, UN University International Institute for Global Health Chair, Global Alliance for Chronic Diseases Read More | | | Gerardo Jiménez-Sánchez Director General National Institute of Genomic Medicine, Mexico Instituto Nacional de Medicina Genómica
Read More Abstract | | | Klaus Lindpaintner Vice President and Director, Roche Genetics F. Hoffman-La Roche Ltd. Read More Abstract | | | Olufunmilayo Olopade Professor of Medicine and Human Genetics Director, Cancer Risk Clinic Read More Abstract | | | | David Cox Senior Vice President and CSO Biotherapeutics and Bioinnovation Center Pfizer Inc. Read More | | | Raj S Ramesar Professor and Head Division of Human Genetics MRC Human Genetics Research Unit Institute for Infectious Diseases and Molecular Medicine Faculty of Health Sciences University of Cape Town and Allied Hospitals
Read More | | | Jeantine Lunshof Assistant Professor European Centre for Public Health Genomics Maastricht University & Department of Molecular Cell Physiology VU University Amsterdam
Read More | | | Philippe Ducor Associate Professor in the Department of Commercial Law Director of the Interdisciplinary Master in Life Sciences Law Université de Genéve Read More | | | James Toupin General Counsel United States Patent and Trademark Office (USPTO)
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Deadline for Abstracts:
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31 August 2009
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Registration:
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Who should attend? - Scientists focus in genomics and genetics research
- Bio-ethicists, sociologists, anthropologists
- Government officials, policy makers from Health Ministries or departments
- Legal advisors, Legal practicioners interested in legal matters relating to new technologies & policies in human genome sequencing, personalised sequencing, personalised medicine
- Executives from Insurance companies and pharmaceutical companies
- Academia in human genetics and genomics
- Researchers interested in sequencing research, technologies, drug discoveries
How much is the registration fee? - Standard Registration Fee : CHF890
- HUGO Member Registration Fee : CHF715
- Student Registration Fee : CHF300 (Conference dinner is not included for this rate)
To claim student discounted registration fee, kindly email your University ID or letter of proof to hugoadmin@gis.a-star.edu.sg What does the registration fee include? - Entrance to symposium on 1st – 3rd November 2009
- Daily refreshment and snacks
- Gala Dinner
- Symposium proceedings
HUGO is happy to discuss registration waivers with young scholars and young scientists to attend GELS 2009. Please contact honyf@gis.a-star.edu.sg for further details and discussion. For HUGO members, the EARLY BIRD Registration Fee applicable is CHF500! Go to our event website now for online registration!
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E-mail:
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hugoadmin@gis.a-star.edu.sg
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