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Rare Diseases and Orphan Drugs Meeting

Association Francaise contre les Myopathies (AFM) , Palais du Luxembourg, Paris
Septembre 20, 1996

Program:
The goal of this meeting sponsored by the French Muscular Dystrophy Association (Association Francaise contre les Myopathies, AFM), The Cystic Fibrosis Association (Association Francaise de Lutte contre la Mucovisidose, AFLM), the Ligue contre le Cancer and AIDS is to define the role that patient groups may take in the enactment of the European Orphan Drug Law.That legislation which is being drafted now by the European Union will be based on the American model, the Orphan Drug Act. The Orphan Drug Act is built upon incentives that are aimed at luring pharmaceutical companies into developping drugs that should otherwise have little commercial value.If you believe in the urgency of enacting an Orphan Drug Law in Europe, a representative of your association may want to attend the September 20 meeting.If you cannot attend this meeting but wish to help in this effort, please advise Dr. BOUILLET that you would like to be kept informed about the proceedings of the meeting.

Registration :
Please contact Dr. Marc BOUILLET at the Association Francaise contre les Myopathies (AFM) early as attendance will be limited :phone : 33-1-42-16-58-58fax : 33-1-42-16-58-87email : dlasland@myologie.infobiogen.fr

Deadline for Abstracts: no abstracts

Email for Requests and Registration: dlasland@myologie.infobiogen.fr


Posted by: Francoise Biagioli Host: mac177.genethon.fr date: August 08, 96 14:15:25
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