3 September 1997

Apparent pt location: California

Hello,

I pray that you will be able to help us in finding any information regarding De Barsy Syndrom. Our two grandchildren from the same daughter has this syndrom. One is a 11 yr old girl, the other is a 5 year old boy. They were both born with this disorder. They both have symtoms like that of a autistic child. We are striving to understand more about this & the prognosis. Our daughter has gone to college to learn how to work with disabled children. Her dr.s know very little about this rare disorder. Any help finding information about this disorder would so very much appreciated. The children are now being seen by Drs. at the Shrine Hospital in Sacramento.

Thank you, in advance for your help

Editor's comment:

De Barsy syndrome is a progeroid disorder. There is an international progeria registry in New York. They can be reached at (718)494-5333.