3 September 1997
Hello Folks,
This post is an open invitation to doctors, medical facilities, and
support organizations working with mitochondrial myopathies and related
disorders.
The next volume of the "MELAS Primer 1997" is in the editing
stage. It's a Adobe Acrobat 3.0 PDF file available at the "Downloads"
page at the MELAS Online Network's website at: http://www.poseidon.net/melas
This is an opportunity to have your contact information made available
world-wide in a Internet-ready publication that is specifically oriented
to provide information in layman's terms about the MELAS Syndrome and other
related disorders. The Primer contains a list of facilities that treat
mitochondrial disorders, and it needs to be expanded to include more US
domestic and international contacts. We were recently made very aware of
the scarcity of facilities in some parts of Europe, and of the former Soviet
Union, and in parts of the Third World, and would especially like to include
the contact information of facilities in these parts of the world.
The Primer PDF file has printing permission for situations where an individual
may not have Internet access, but would be able to obtain a hardcopy from
some one who does. The Primer is current available in the English language
only.
Please feel free to download the current volume, and review it to see if
you would be interested in having your contact info added to the next volume.
It is viewable on any platform or operating system simply by downloading
the appropriate version of the Adobe Acrobat Reader 3.1 (also available
via a link at the "Downloads" page).
The information that you provide would need to include the following:
Very sincerely yours,
Mike Jackson