28 March 1997
I am looking for any information on Leber's Hereditary Optic Neuropathy (LHON), or people/institutes currently researching into LHON and related (Mitochondrial) topics.
I am a trustee of the LHON Trust, a UK charity dedicated to gathering and distributing information on this rare condition, and encouraging research into it.
I am maintaining a WWW site dedicated to LHON and related topics to further improve the spread of information world-wide, and have had patients and their families contact me from several countries already. Any comments on this site, especially suggested additional sources of information, would be greatly appreciated.