22 November 1996
DEAR SIRS, I AM IN NEED OF ALL THE RESEARCH DATA CONCERNING (PONTONEOCEREBELLAR OR OLIVOPONTONEOCEREBELLAR HYPOPLASIA)
I have a 40 day old, male, 37wk, 2.34kg at birth,child. MRI shows brain abnormalities. poor but stabil Resp. I think it is pontoncerebellar hypoplasia but can find little info in MED.LIB.. Also who and where are the experts on this disease. thanks
Apparent patient location: USA