HUM-MOLGEN DIAGnostics/Clinical Research


21 April 1997
adrenoleukodystrophy/PT Req


Sir, My name is xxxxxxx of xxxxx, Colorado. My two brothers have adrenomyeloneuropathy. They are currently near, ( what I am deeming as the final stages), of this terrible disease. I stumbled across your site and have been impressed with the in depth discussion of similar diseases. Dr's. M. Vorgerd, S. Fuchs, M. Tegenthoff, and J.P. Malin wrote a paper, published by this site related to adrenoleukodystrophy. Their combined knowledge is of great interest to me and my family members. I am curious to know if these individuals have other published articles. Additionally, I am interested in knowing if other members of this forum are aware of the tragic effects of this "Bloody" disease ! The individuals of this forum appear to be at the fore-front of mutiple areas of medical investigation and resolution. Can you or other individuals of this forum provide me with a direction offering "promising" results ?

Apparent Pt location: US


REPLY DIRECTLY TO HUM-MOLGEN (gambacorti@icil64.cilea.it)