21 April 1997

I want to say thanks for reading the below information and any help or advise you could provide us would be most helpful as we have been living in fear for over the last five months. My husband is 40 years of age and has been told he has a form of undiagnosed leukodystrophy. CT SCAN OF THE BRIAN WITHOUT AND WITH CONTRAST 11/22/96 Pre contrast scan demonstrates extensive areas of low density involving the cerebral white matter bilaterally. Some low density of the basal ganglia is also noted symmetrically. Posterior fossa structures appear normal. Presently he is back to work full time and has been taking sansert for his headaches which helps. We have seen other doctors who are puzzled on why he looks good when defiantly the results of the MRI are so abnormal. I myself who is 38 years of age am trying to research as much as possible for our family. My husband has been very snappy and living with this stress is hard. WE have two daughter ages 9 and 13 and its scary to think this might be genetic or even to know that they might not have a dad in 10 years time. Any help you can give us would be most appreciated. As we were told if we could find out what this it we could hopefully slow down the progression.

Apparent Pt location: US