HUM-MOLGEN DIAGnostics/Clinical Research

20/6/96

DYSOSTEOSCLEROSIS (McK#224300)

I have just seen 4 y/o young lady with clinical and radiographic findings consistent with the diagnosis of DYSOSTEOSCLEROSIS (McK#224300).

The parents (and I) are interested in as much information as possible that could contribute to understanding more about the natural history of this disorder. I have access to the usual resources (Medline, Excerpta Medica, etc.) that are mostly individual case reports. I am very interested in collaborating/sharing with anyone that could contibute to understanding the natural history of this condition(?s?).

Thank you.

Ronald L. Haun, MD

Please e-mail or contact me by Mail:

Mailman Center for Child Development Rm 5052; 1601 NW 12th Ave.; Miami, FL 33136

or by Phone: 305-243-6006

or by Fax: 305-243-3919