17 June 1997
The National Human Genome Research Institute is soliciting patients with Greig Cephalopolysyndactyly syndrome for a research study. The purpose of the study is to perform clinical and molecular characterization of sporadic and familial cases of this disorder. Subjects accepted into the study will receive paid travel to the NIH, a medical genetics evaluation, appropriate imaging studies, and specimen acquisition for development of clinical diagnostics and genotype-phenotype correlation.
PLEASE NOTE AS OF JANUARY, 1997:
We are now OFFICIALLY the National Human Genome Research Institute
PLEASE NOTE NEW EMAIL ADDRESS.
Ann CM Smith, M.A.,
CGC Translational Research & Laboratory Support Unit Protocol and Laboratory Support Core
Medical Genetics Branch, NHGRI-NIH
BLDG 10, Room 3D53
10 Center Drive, MSC 1267
Bethesda, MD 20892-1267
NIH office: 301-402-2011
NIH FAX 301-435-3495 (NEW FAX)
NIH email email@example.com
BEEPER 202-539-4091 (at the tone enter your telephone number with AC and then the # sign