HUM-MOLGEN DIAGnostics/Clinical Research

June, 10 1999
Dysplasia spondylo-epiphysaria congenita

I am a physiotherapist of a child of 1,5 years with Dysplasia spondylo-epiphysaria congenita and I am intersted in having contact with you and other parents or physiotherapist which have experience with this disease.

I have some questions:
Do you have experience with Vojta-therapy or another kind of therapy of skoliois of little children?
Which kind of therapy do you make with your child?
Can you give me other adresses of specialists of this disease?

Our doctor denies, that physiotherapy will be helpfull. He says we must wait, and later we have to make an operation. What do you think about this?

Yours sincerely